One of the most annoying things to me, is when you watch a sporting event, and there is one team that is a huge underdog, but they end up winning the game; And then you are talking with some friends the next day and everyone is like “What a crazy game, I can’t believe Duke lost to West Arkansas State University. I never thought we would see a 16 seed beat a 1 seed.” And then there is the guy who is all like “Yea, I didn’t have it on my bracket, but I thought West Arkansas State was going to win the whole time.” Everyone just kind of smiles and is like “Oh yea, cool”; but inside they are all like “You are such a liar, no one could have possibly known that West Arkansas State University was going to beat the best team in the history of college basketball!” If you’re just really not a sport fan, and I did a horrible job of making the analogy, my apologies – I hate it when someone acts like they knew this unpredictable thing was going to happen, when they never said anything about it before it happens.
Well I definitely do not want to be that guy. I don’t want to be the guy who says “Yea, I trusted God all along” after he brings my girl out of trouble over and over and over again. We trust Him with Kennedy’s life, and we trust in His plan with her life. Even when it’s hard. Although the title of the blog my lead you to believe otherwise, unfortunately now, it’s a little hard.
I am reminded of my absolute favorite verse in the Bible: 2 Corinthians 12:9 –
But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.
Here is our story of weakness. A story we trust will reveal the immeasurable power of Christ:
The week of Thanksgiving Kennedy was admitted to the hospital. She was weak, she had breathing difficulty, she wasn’t eating and it was obvious she felt miserable. After an evaluation and X-Rays were done, we discovered she had double viral pneumonia. It was a really tough week for us; Kennedy was terribly sick and only wanted Momma, she was back on oxygen which is difficult for her to wean from, the big girls are not permitted in the hospital during flu season, and we spent Thanksgiving apart. If all of that wasn’t bad enough, they ordered an echo to see how her heart looked. She still has a small hole (ASD) so the cardiologist has kept up with her all along. Her cardiologist was away so another doctor from the group reviewed the results. He told us that he had some pretty serious concerns. He decided to go back to her images of her heart in the womb and compare them with current pictures of her heart to determine there is a high probability that she has a disease called pulmonary hypertension (PH).
If you’ve never heard of PH before, consider yourself lucky. It is currently an incurable disease in which there is increased pressure in your lung’s arteries causing the right side of your heart to over work itself. Obviously not the kind of news we were expecting. The only way to test these suspicions and know for certain was to perform a heart catheter which Kennedy had on Wednesday. They put her under anesthesia and inserted the catheter through a vein in her groin area to get a better look at her arteries and measure the pressures. They called us while we sat in the waiting room a few times to update us and let us know she was doing well. The doctor she saw back in November performed the procedure and finally after hours of waiting called us down to update us. The results were that she does in fact have PH. She responded well to the medication so they were very happy to report that but they also let us know that they’d made several unsuccessful attempts at closing her ASD. He was able to show us the attempts on videos (in X-Ray looking video clips) and show us that issues came down to the small size of her heart. With that he said we are looking at two options that the group will discuss tomorrow. One is to allow her time to grow and continue treating her PH and then attempt another cath. The other is to go ahead and surgically close the hole. Yes, this terrible open heart surgery that we’ve managed to avoid for so long was now being spoken of again. We waited anxiously for news the next morning. Around 9 am the doctor came into KC’s hospital room and told us that the group met and they decided open heart surgery (although trickier with her PH) was the best option and carefully explained all of the reasons that conclusion was reached. They feel there is a chance this may help her PH improve.
So, here we are again, praying for healing for our little “baby” that has overcome so much already. God has been so good to us and brought her so far. I know he carries her in his hand. She has such a terrific team of doctors caring for her that we have full confidence in but this is still very scary. We would love for you to join us in prayer. Surgery should be scheduled early next month. We don’t have the exact date yet but will probably be in the beginning of February.
Recently, my pastor shared a story about his son being really confused that God knows everything. He asked his Mom if it was OK if he called God a “wacko” because it’s really wacky that he can know everything. And really, it is wacky. Another friend of mine said he liked to think of God’s ability to know everything the same way he watches a great movie with a friend that has never seen it before. He gets to that really good part, and he looks at his friend and he’s like “Are you watching, here it comes…”. He said he envisions God doing this in heaven. He gathers people around, and says “wait watch this, it is a really good part coming up. Don’t miss it.” I can imagine God, sitting in heaven with Kennedy’s great Grandparents that were never able to meet her. I can imagine God putting his arm around them, and saying. “Wait, watch this. It’s a really good part coming up.”
Matthew 21:22 – And all things, whatsoever ye shall ask in prayer, believing, ye shall receive.
Jeremiah 29:11 – For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.
Nahum 1:7 – The Lord is good, a refuge in times of trouble. He cares for those who trust in him.